Connecting with Canadians

Research Report:

Understanding Canadians' Attitudes and Expectations: Citizens' Dialogue on Privacy and the Use of Personal Information for Health Research in Canada

by Mary Pat MacKinnon, Nandini Saxena, Marilyn Swinton, Judy Watling, Don Willison

Understanding Canadians' Attitudes and Expectations: Citizens' Dialogue on Privacy and the Use of Personal Information for Health Research in Canada. Nandini Saxena, Mary Pat MacKinnon, Judy Watling, Don Willison and Marilyn Swinton. Research Report P|09. March 2006. 42 pp.

Almost 100 randomly selected citizens considered this question last year in a series of day-long deliberative dialogues. The dialogues were organized by CPRN in collaboration and under contract with a team of researchers from McMaster University, whose research project is funded by the Canadian Institutes of Health Research and Health Canada.

Groups of about 15 participants each gave up a day of their weekend to meet in Halifax, Montreal [2 sessions], Toronto, Hamilton and Vancouver [2 sessions] to determine under what conditions they might feel comfortable with the use of their personal information for health research.

The report, Understanding Canadians' Attitudes and Expectations: Citizens' Dialogue on Privacy and the Use of Personal Information for Health Research in Canada, by Nandini Saxena, Mary Pat MacKinnon and Judy Watling of CPRN's Public Involvement Network, and Don Willison and Marilyn Swinton of McMaster University's Department of Clinical Epidemiology and Biostatistics, presents the results of the dialogues.

Release Date: 5 May 2006
Number of pages: 42
Document number: 43383